For Patients
Patients seeking information about VCU’s diagnostic, consultative and therapeutic services can learn more and make appointments below:
- Neuromuscular clinic at VCU Medical Center
- Neuromuscular clinic at Children’s Hospital of Richmond at VCU
Patient Education Day
Saturday, May 17, 2025
Join us for Patient Education Day! The Center for Inherited Myology Research will hold its 3rd annual Patient Education Day on May 17, 2025.
This is an opportunity for patients, families, and caregivers to learn more about research in neuromuscular diseases and connect with researchers in the Center for Inherited Muscle Research at VCU. Allied health providers will also be present to discuss and answer questions around support and therapies.
In-person and virtual attendance will be offered. Registration for 2025 Patient Education Day is coming soon.
Patient Support Organizations
- Muscular Dystrophy Association
- Myotonic Dystrophy Foundation
- Facioscapulohumeral Muscular Dystrophy (FSHD) Society
- Limb-Girdle Muscular Dystrophy (LGMD) Awareness Foundation
Current and Upcoming Natural History Trials
- Establishing Biomarkers and Clinical Endpoints in Myotonic Dystrophy Type 1 (END-DM1)
- Assessing Pediatric Endpoints in DM1 (ASPIRE-DM1)
- Defining Endpoints in Becker Muscular Dystrophy
- Trial Readiness and Endpoint Assessment in LGMD R1
- Coming soon: Trial Readiness and Endpoint Assessment in Pediatric Myotonic Dystrophy Extension (TREAT-EXT)